Diagnosis Get!
Friday, 6 March 2026 10:44 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
crashmarguliesI keep meaning to write a longer, more explanatory post, but as NIBF keeps reminding me, writing is exertion and the TL;DR is I have ME/CFS, a disease that causes any exertion, even (and sometimes, it seems for me especially) mental and emotional exertion, to profoundly exhaust me.
So here's an edited version of a reply I wrote toflamingsword on my preamble post.
I'm incredibly fortunate to have an understanding, compassionate, virally-conscious GP (as long as my underfunded local hospital stays open to employ them), and they charted both ME/CFS and PASC (post-acute sequelae of COVID, or Long COVID) for me, as well as documenting some retrospective history of illness.
M.E. is a post-viral illness. My symptoms sharply increased after a 2022 COVID infection, but it's possible that either a 2009 swine flu infection or three norovirus infections between 2012 and 2015 were the first things to trigger my M.E..
Next steps:
1) following up with an outside medical organization for a sleep study (my main hospital recently closed their sleep study department). I have to check out basic viral safety options and some PTSD and personal safety matters before I decide whether to go ahead with scheduling the appointment.
2) seeing how much low-dose naltrexone is at my local compounding pharmacy to see if
a) my insurance covers it and
b) when it almost certainly doesn't, if my family can afford it otherwise
All the recommended testing for GERD related issues involves taking off my respirator, so that's out for now.
Working on a longer explainer about ME/CFS with NIBF's input, so especially lmk if you have questions about it!
♥ C
So here's an edited version of a reply I wrote to
flamingsword on my preamble post.I'm incredibly fortunate to have an understanding, compassionate, virally-conscious GP (as long as my underfunded local hospital stays open to employ them), and they charted both ME/CFS and PASC (post-acute sequelae of COVID, or Long COVID) for me, as well as documenting some retrospective history of illness.
M.E. is a post-viral illness. My symptoms sharply increased after a 2022 COVID infection, but it's possible that either a 2009 swine flu infection or three norovirus infections between 2012 and 2015 were the first things to trigger my M.E..
Next steps:
1) following up with an outside medical organization for a sleep study (my main hospital recently closed their sleep study department). I have to check out basic viral safety options and some PTSD and personal safety matters before I decide whether to go ahead with scheduling the appointment.
2) seeing how much low-dose naltrexone is at my local compounding pharmacy to see if
a) my insurance covers it and
b) when it almost certainly doesn't, if my family can afford it otherwise
All the recommended testing for GERD related issues involves taking off my respirator, so that's out for now.
Working on a longer explainer about ME/CFS with NIBF's input, so especially lmk if you have questions about it!
♥ C