Sunday, 25 August 2030 05:07 pm
crashmargulies: a white nonbinary person in glasses and a black KN95 respirator mask. They have a silver and blue decorative chain across their mask with star, bead, and evil eye charms dangling from it. (irl me)
Some of the writing on this page is friends-only, meaning you can't see it unless logged in and added to my circle. This is a privacy filter, not a paid tier. Friends access also gives you my fannish links in a pinned post.

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You may also be looking for:
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crashmargulies: (Cat house)
The house has decided to do a little Dreamwidth clinic so to speak, because I'm realizing I assumed a level of pre-algorithmic internet navigation knowledge for my Cat Housemates that does not exist—they are elder Gen Zers and I am a young Millennial.

What was something you remember learning when you First Got On the Internet?
What was something you wish you had known about navigating LJ or DW earlier in your LJ/DW life?
Do you have nagging questions about the platform still?
crashmargulies: (sword)
Alright, I'm accepting that Thoughts From Last Week is going to run somewhat off-kilter to what some would call a weekly schedule, as last edition was belated and brought us to Tuesday 7/28. I've written before about the difficulties of keeping time with myalgic encephalomyelitis. I've also been reminded that crip time is a well-established concept in disability justice spaces, like in the essay "Six Ways of Looking at Crip Time" by Ellen Samuels.

To honor that, we're keeping the name and just using "last week" to mean like, "eh, you know, the other day?"

I'm also doing better about staying off of algorithmic media so I'm pleased to note that some of these were just typed into a text document as musings for TFLW and not posted to Instagram at all =)





Tuesday, July 28


7:52 PM
Hey queer ppl. Why is it still an insult to be a bottom?

Like literally an insult so bad we accuse people hurting us of being bottoms?

Maybe we should work on that

Later in the week, Cat House had an interesting conversation about sex & sexuality, kink, and care work—both giving and receiving. I have definitely got at least one book about this on my TBR, so I'm making a mental queue to slowly chew through. I read non-fiction much slower than my fiction, usually, and consume a lot of my nonfiction media as 2+ voice podcasts; I find the conversational format/ question and answer to be helpful in my absorption of information.



Read more... )



That's all for this installment of TFLW!

I've started a new writing project in earnest (my friends/access can see posts about a new project, called
necromancy novel I've been (gladly) focused more on writing that, reading for that, and writing about the process of writing now that I'm at a very different point in my health than I was when I wrote my first book, Crazy Beautiful Life.

My whole house is also on the "let's scroll less" kick, which makes us all feel more inspired! My metamour / housemate [personal profile] stink_mikenzie posted recently about her Doom Deck For Frictionless Free Time and I think it's an awesome concept if you're looking for something similar to a dopamine diet or something else that can be an alternative to scrolling.

I've also been reading a lot; as always, you can catch my book choices & sporadic reviews over at theStoryGraph (some books I choose not to read with a super critical eye, like childhood/teenage nostalgia titles)

That's all for now!

♥ C
crashmargulies: (writing)
This a slightly belated installment of Thoughts from Last Week. I'm still deep in P.E.M. from both my wedding and my state-level disability services assessment, which I mention below. (




Monday, July 20


11:10pm
Had my CADI assessment today (state level assessment for accessing disability services to keep me living at home)

It sent me into a migraine/more PEM as I am still actively recovering from the wedding but at least it's done now!!!



Read more... )



That brings us to today, so I'll stop there! What kind of thoughts have you been having this past week? Let me know,

♥ C
crashmargulies: An icon depiction of an active wheelchair user overlaid with the colors of the disability flag (charcoal grey, green, blue, white, yellow, and red). (disability flag chair)
This is part zero of Cripplepunk My Wheelchair. See all posts about the Cripplepunk Chair (Aradia) or view the masterpost here.




I'm listing this idea as its own step and also as a pre-start step because I've found un-branding my mobility aids to be a continuous process as I buy new parts, upgrade my gear, and Frankenstein my stuff to work better for me. Each new piece (cushions, footrest, even bags!) often has its own branding that needs to be removed with its own considerations.

I'm not the first person to bemoan the absolutely ridiculous amount of branding plastered across prosthetics, adaptive gear, mobility and medical devices, and the like; and I certainly won't be the last. The fact is that often, objects we need to use every day, wear on our bodies, have in our photos, and more are plastered with the logos of medical supply companies—often the very same companies making it exorbitantly expensive to own the gear we need to live.

I consider myself an anti-capitalist, and in line with that ethos, when I can, I avoid wearing brands on my body. When taking brands off of mobility equipment, I've found a few tools are really helpful.

The only branding / marking I tend to keep is anything instructional (arrows, fill lines, mL marks) and anything that identifies the device, like a model or serial number. Even if you don't have a warranty or it has lapsed or been voided, it may be helpful in identifying information for repairs or replacement parts.




Factors to Consider when Picking Tools



- if you own the gear or are renting / borrowing it, and therefore...
- how permanent you want the change to be
- if a change may void the warranty
- how vivid or obvious you want the cover-up
- how waterproof or washable you need the piece / area
- how often this area or piece should be properly sanitized or disinfected with chemicals
- how often that area will be touched by you / people (consider when you are using the gear, moving the gear, when someone else may be assisting, when in a crowd, etc)
- how often that area will be touched by objects / furniture / friction
- if that area touches or interacts with other gear parts, i.e. to seal, snap, fold, adjust, remove etc




Cover-Up Options


Read more... )



Removal Methods



These methods are generally "destructive" and cannot be fully reversed, so keep that mind mind before pursuing them.

Read more... )




So, that's the first part of Cripplepunk My Wheelchair - make it less capitalist and more punk!

Next up will be basic maintenance from when I first received the chair. I am working on that post as we speak—it's a shorter one, mostly explaining where to find some features of this specific model and some things I know to check for in basic chair positioning and functionality.

If you have any questions, leave them here or on any CPMWC post!

Cheers 'til later!
Crash




This is part zero of Cripplepunk My Wheelchair. See all posts about the Cripplepunk Chair (Aradia) or view the masterpost here.
crashmargulies: An icon depiction of an active wheelchair user overlaid with the colors of the disability flag (charcoal grey, green, blue, white, yellow, and red). (disability flag chair)
This is the main landing page for the "Cripplepunk My Wheelchair: Karman LT980 (Aradia)" series. See all posts that reference this chair or view the Table of Contents below. Note the series is still being written & posted.




In another life I was in an associate's degree program for Occupational Therapy. I didn't finish field work, but I did finish all my OT-specific classes. The sicker and more disabled my friends and I get, the more I find myself using those skills and thinking patterns for my own benefit.

One of those projects has been to slowly modify / adapt an extremely basic hospital chair/transport wheelchair that I inherited from a friend. The modifications started when they owned the chair, but I have to continue them in order to make the chair usable for me.

When looking into what others have done to make their basic Amazon or drugstore wheelchairs more functional, I saw that people linked this post by Erik Kondo / Open Source Wheelchairs over and over. I love Open Source Wheelchairs / DIY Wheelchair Supply, and my new wheels that went on this chair come from DIYWS! However, his post is not super instructional for me, and as someone with very little starter wheelchair experience or knowledge, I found I had to back up and do a lot of other basic stuff first.

I also found that some popular reddit posts also talked a lot about hardware store trips, power tools, and the like. I have had no income for most of the last three years. My skills also lean way more towards the DIY adaptations and summer camp chaos crafting, and you will absolutely see that in the work I do. I also found that a lot of blogs and forum posts are discussing adaptions for chairs that are already more ideal than my own, which made some really interesting design choices; and that I received as a hand-me-down, so I had no input on the initial specs.

I am disabled and living in poverty, but also an anarchist witch and crafter, and I refuse to let capitalism deprive me of a tool I desperately need as a person with moderate to severe myalgic encephalomyelitis. So I have assumed the risk for my DIY modifications, and I am not giving you medical advice.

I don't recommend doing everything the way I do it. In fact, some of my mods are definitely unsafe compared to ordering the correct part (i.e. anti-tippers) and just installing that as instructed.

I decided to document my process for my chair in case someone else stuck with a less-than-ideal chair may benefit from the things I learned! Please leave comments here or on any of the forthcoming posts if you have questions I didn't answer.

I am still actively writing the step-by-step posts, so bookmark this main post or check my blog periodically for the next pieces of the write-up!h

The Insufficient Chair


Read more... )

The Modifications



A black and burgundy wheelchair that has been modified. It has a teal paisley backrest; larger black wheels with rainbow spoke decorations; a home-made footplate supported by nylon straps; and some attachmrnts zip-tied to the arms.
Aradia, with all her updates as of 25 July 2026

All my modifications have been made to be undone so that the chair can be reset to its old factory self (although I'm not 100% sure where the original footplates are) and/or the pieces can be repaired or replaced. I hope to get a custom chair eventually and to be able to hand this chair down to someone else in my community who may be in need of one!

All mods so far have retained the chair's ability to fold.

I'll do my best to list materials needed in each modification, though please note that your theoretical chair is not my chair, so you may need different tools if you try something similar. That said, this process would have been pretty impossible without a basic socket set & some wrenches. Listing specific gauges probably won't be helpful unless you're buying & using the exact parts we are on the exact chair model, but I will mention size when I've learned it's a wheelchair standard of some kind, i.e. common between many chairs. This will make more sense especially when we talk about wheels & axles.


The Steps



Here are the modifications I have made for my chair, in a kind of combination of the order I made them and the order it would have been most convenient to make them. The post will cover the most optimized version of the solution/s I found, even if it took me several tries. I'll do my best to mention if I want to improve my process or if I've thought of alternative methods I didn't use, just in case that's helpful!

Each of these will be its own post with images. I didn't always document my process very thoroughly but I will make an effort to go back and take photos.

0. De-branding

1. Basic maintenance after inheriting the chair and adjustments for proper positioning, including treating the casters for a "shopping cart" flutter

2. Added a removable cushion.

3. Problem-solved some incorrectly ordered anti-tippers with duct tape & pliers (safer than it sounds, I promise)

4. Modified a fabric foot sling into a more solid foot plate for better posture and support

5. Added a removable backrest support

6. Some routine maintenance & small fixes

7. Upgraded to 24-inch solid rubber wheels with ergonomic (oval) push-rims from DIY Wheelchair Supply

More on all those processes can be found in the linked posts. As this is my masterpost of modifications, I'll update it as a Table of Contents for completed modification and for my next step plans!

Next Steps


Read more... )



Next Post: Basic Maintenance (Round One)


Being drafted



If you have any questions, leave them here or on any subsequent CPMWC post—I'll address them in an FAQ/Things I Missed if I get enough of them, or just answer you in the comments & edit the relevant post to include your info!

Happy Disability Pride Month!

♥ Crash
crashmargulies: An icon depiction of an active wheelchair user overlaid with the colors of the disability flag (charcoal grey, green, blue, white, yellow, and red). (disability flag chair)
Minus a couple of new photos, I am ready to start posting my more detailed series on modifying my hand-me-down drugstore wheelchair, which I'm calling "Cripplepunk my Wheelchair!"

I started writing these posts well before the wedding, but my new wheels finally arrived and I think I finally found a long-lasting foot-plate position/solution, so I feel ready to start posting what I have and writing up the rest!

Very excited to get this started before Disability Pride Month (July) ends.

If you've been following along with the journey, you may remember we were searching for a name! While I originally wanted to change the color entirely (from burgundy to green), I've decided not to bother. With the dark red as inspiration, I've decided to go with Aradia, our rust-blooded Homestuck troll who was once raised from the dead for a more important purpose.



Anyway, keep a lookout for a CPMWC intro & first steps in the next few days, after I can give Aradia a better photoshoot!

♥ C

About the Author

Crash Margulies is a virus-avoidant, disabled, polyamorous, and queer-trans artist & activist living on Očhéthi Šakówiŋ (Dakota) & Anishinaabe land, colonized as Minneapolis, MN.

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